Key learning objectives:

  • Gain insight into the different roles of stakeholders in medical research
  • Appreciate the difference between pre-clinical and clinical research
  • Understand the research process from idea to medicine delivery

Key learning objectives:

  • Understand what patient public involvement is and is not
  • Understand the benefits of patient public involvement in research
  • Gain insight on how patient groups can get involved from Parkinson’s UK case study 

Key learning objectives:

  • Appreciate the value of collaborations between researchers and patient groups
  • Understand the different ways patient groups can work with researchers
  • Begin your process of developing a research strategy

Key learning objectives:

Key learning objectives:

This course is intended to introduce patient registries and the logistical considerations around running a registry.

Key learning objectives:

  • Differentiate between a patient registry and a product registry
  • Understand the benefits and different uses of a patient registry
  • Appreciate the different aspects to running a patient registry

Key learning objectives:

Key learning objectives:

  • Understand how medicines are regulated and approved in Europe
  • Gain insight into how patients and patient groups can get involved in the process
  • Learn the difference between off-label and compassionate use

This course is intended to explain the principles and practices of Health Technology Assessment (HTA) processes, and how they apply to rare diseases in the UK.

Key learning objectives:

  • Differentiate between health, health systems, health technologies, and Health Technology Assessments
  • Appreciate the different bodies which conduct Health Technology Assessments in the UK
  • Understand how your patient group could get involved in Health Technology Assessments