Sunday, 27 September 2020, 8:51 PM
Site: Findacure
Course: Findacure (Findacure)
Glossary: Main glossary


Conditions that only affect an even smaller group of patients than orphan diseases, typically affecting fewer than 1 in 50,000 individuals (All Wales Medicines Strategy Group, 2015).

Umbrella Registry

Registries that are set up for multiple conditions that a particular rare disease could fit into

Unrestricted funding

Funding provided to a charitable organisation without any restricted around its use.

Utility values

Utilities are used to represent the strength of an individual's preferences for different health state