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The branch of medicine that involves the care of
infants, children and adolescents
A participant is someone who takes part in a research project. Sometimes participants are referred to as research "subjects".
An organisation set up to represent the views of
patients and families around all issues relating to a condition, from
diagnosis, care and management, and treatment.
Patient information sheet
Researchers must provide a patient information sheet to everyone they invite to take part in a research study, to ensure people can make an informed decision about this. The sheet explains what taking part will involve and should include details about:
patient registry is a centralised database that systematically collects
information about people who are affected by a particular condition or have
specific interactions with a health service.
Patient reported outcome
health outcome directly reported by the patient who experienced it
Peer reviewing is where a research proposal or a report of research is read and commented on by people with similar interests and expertise to those who wrote the proposal or report. Peer reviewers might be members of the public, researchers, or other professionals. Peer review helps to check the quality of a report or research proposal. Members of the public who act as peer reviewers may choose to comment on:
The point of view that an analysis is conducted
A pharmaceutical company is a company that develops, produces, and markets drugs for use as medications.
study of the use and effect of drugs in a well-defined, large population
The study of how a drug enters, moves through
and leaves the body. This can include its absorption, distribution, breakdown
Clinical trial programmes are divided into
different stages, called phases. There are three main phases where Phase I
trials typically involve testing a drug on a small number of healthy volunteers
to assess safety, Phase II trials are testing on a small number of patients to
assess the efficacy and Phase III allow this to be scaled up to much larger
The set of observable characteristics in a living organism
The full set of an individual's observable characteristics reflecting genetic inheritance, genetic mutations, and environmental influences. Phenotypic data can include the results of clinical tests, scans, and descriptions.
A small scale preliminary study to evaluate the
feasibility, duration, cost and side effects prior to embarking on a full-scale
A placebo is an inactive medicine which has no treatment value.
Predatory price hikes
A greater liking for one option over another
A press release is an essential communication tool that is used to get your message across to the media in one fell swoop. It follows the structure of a typical news story including relevant quotes and 5 Ws and 1 H (who? what? Where? When? Why? and how?). Whether you want to announce a fundraising event, launching an awareness campaign, promoting an accomplishment or engaging in any clinical trial/research programme, a press release can be used to get the right publicity.
The proportion of a chosen population that are
affected by a single disease.
A biologically inactive compound which can be
metabolised in the body to produce a drug
The extent to which an individual can work
To increase or spread at a rapid rate
A protocol is the plan for a piece of research. It usually includes information about:
A protocol describes in great detail what the researchers will do during the research. Usually, it cannot be changed without going back to a research ethics committee for approval.
Pseudonymisation is a process that removes or replaces information that identifies an individual within a data set. This may involve replacing names or other identifiers with a less easily recognisable reference number.
A condition caused or aggravated by a mental factor such as internal conflict or stress