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Randomisation randomly assigns patients to a control group or treatment group in clincial trials. It removed bias from trials, which could make the test unreliable.
A person who is appointed by an organisation to report on the proceedings of its meetings.
The EU defines a condition as 'rare' if it affects less than 1 in 2000 people.
A collection of information about individuals.
Following regulatory approval, a reimbursement
body will decide whether the manufacturer will be paid the cost of the drug,
based on a cost-effectiveness calculation. In the UK, the National Institute
for Health and Care Excellence (NICE) decide whether a drug will be reimbursed,
i.e. whether the NHS will fund patients' treatments
The reduction or disappearance of the signs and
symptoms of a disease
Research Ethics Committee
Groups of professionals and service users who review the ethical considerations of research studies.
Funding provided to a charitable organisation with restrictions around its use to a specific project.