Main glossary


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U

Ultra-orphan

Conditions that only affect an even smaller group of patients than orphan diseases, typically affecting fewer than 1 in 50,000 individuals (All Wales Medicines Strategy Group, 2015).



Umbrella Registry

Registries that are set up for multiple conditions that a particular rare disease could fit into


Unrestricted funding

Funding provided to a charitable organisation without any restricted around its use.


Utility values

Utilities are used to represent the strength of an individual's preferences for different health state